Resources (*by State)

At the Genetic and Rare Diseases (GARD) Information Center, our mission is to support people living with a rare disease and their families by providing free access to reliable, easy-to-understand information in English and Spanish. Improving access to information on rare diseases will help GARD deliver the most up-to-date research and resources to more people faster.

Established by the Rare Diseases Act of 2002, GARD is a public health resource managed by the National Center for Advancing Translational Sciences (NCATS), a part of the National Institutes of Health (NIH), the federal government agency responsible for biomedical research in the United States. The National Human Genome Research Institute (NHGRI) with NIH also contributes funds to the GARD program. GARD emphasizes translational science, or the field of science dedicated to turning observations in laboratories, clinics, and the community into innovations to improve public health.

Toll Free:

1-888-205-2311

Firefly Toolkit
Inspiration, activities, and tools to help children shine bright

Firefly Toolkit is more than just a children’s book — it’s a resource designed to spark conversations, build connection, and remind kids of their inner light. Alongside the book, families, teachers, and caregivers can access printable activities, coloring pages, and bonus materials that encourage resilience, kindness, and self-expression.

The Melodic Caring Project provides ongoing mental, emotional and spiritual support to patients and those battling illness. We accomplish this by connecting patients with musicians, performers, celebrities, and our team of Rockologists, offering a range of programs including music therapy, personalized livestream performances, weekly group sessions and other specialty programs.

For Hospital + Patient Support Contact: Katie Conder

rockstar@melodiccaring.org | 615.946.5748

The HAP Foundation continues the legacy of expert hospice and palliative care available to all. The HAP Foundation, with deep community roots, proudly expands upon that focus providing expert hospice and palliative care education and research. The commitment is to positively impact the experience and future of advanced illness and end of life. This means empowering individuals to make informed choices, and connection to resources that strengthen the continuity of care through the end of life.

Expanding on our commitment, The HAP Foundation proudly offers support through association management, consultations for hospice and palliative care programs and a speaker’s bureau of experienced leaders for events.

(312) 741-1283

 info@thehapfoundation.org

18W140 Butterfield RD. Suite 1120,
Oakbrook Terrace, IL 60181

Scott Cox

Director of Pediatric Programs

Where rare disease and disability communities discover and share resources.

hello@librarey.com

Patient Advocate Foundation is a national 501 (c)(3) non-profit organization which provides professional case management services to Americans with chronic, life threatening and debilitating illnesses.

+1 (800) 532-5274

Patient Advocate Foundation is a national 501 (c)(3) non-profit organization which provides professional case management services to Americans with chronic, life threatening and debilitating illnesses.

+1 (800) 532-5274

Helps people with disabilities improve their quality of life in the community, at home, at school, and at work.

P: (334) 293-7500 

TFN: (800) 671-6837 

FAX: (334) 293-7383

Provides access to assistive technologies and promotes independent living through device demonstrations, short-term loans, and training.

P: (907) 563-2599 

TFN: (800) 723 - 2852

atla@atlaak.org 

Helps Arizonans with disabilities acquire and use assistive technology through device loans, funding resources, and public awareness.

P: (602) 728-9534 

TFN: (800) 477-9921

Fax: (866) 463-9390 

AskAzTAP@nau.edu

ICAN offers support with medical and adaptive equipment reuse, financing, and access to assistive devices for residents with disabilities.

P: (501) 666-8868 

TFN: (800) 828-2799 

Fax: (501) 666-5319

Ability Tools connects Californians with resources for acquiring AT, including loans, reuse programs, and technical assistance.

P: (800) 390-2699 (Option 1) 

TTY: 800-900-0706

Offers device trials, reuse, training, and financing options for people with disabilities.

P: (303) 315-1280

Provides education, training, and services to ensure equal access to technology for individuals with disabilities in Connecticut.

DATI offers device loans, demonstrations, financing info, and AT reuse, helping Delawareans of all ages and disabilities.

P: (800) 870-DATI (3284)

newcastle.atrc@dati.org

kent-sussex.atrc@dati.org

FAAST provides assistive technology device loans, device reuse, evaluations, and training to people with disabilities in Florida.

P: (844) FL-FAAST

infor@faast.org

Offers assistive tech services through training, device lending, assessments, and funding solutions across Georgia.

P: (404) 894-2000

cidi-support@design.gatech.edu 

Promotes access to assistive technologies through device loans, demonstrations, training, and public awareness across Hawaii.

P: (808) 532-7110 

info@atrc.org

Offers device lending, reuse, financing programs, and support for residents with disabilities.

TFN: (800) 432-8324 

Fax: (208) 885-6102 

Offers free AT device loans, training, device reuse, and public education throughout Indiana.

P: (317) 466-2013 or (888) 466-1314 

Fax: (317) 466-2000

Email: tech@eastersealscrossroads.org 

Offers device demonstrations, short-term loans, and a robust device reuse program to promote independence for Iowans with disabilities.

P: (515) 289-1933 

TTY: (515) 289-4069

Helps individuals with disabilities access and finance assistive devices and services.

P: (620) 421-8367

atkapps@ku.edu

KATS provides assistive tech demonstrations, device loans, reuse programs, and training for individuals with disabilities in Kentucky.

P: (800) 327-5287

info@katsnet.org 

LATAN empowers residents with disabilities by providing AT loans, financial guidance, device reuse, and customized tech support.

P: (225) 925-9500 

(800) 270-6185

Helps people of all ages access assistive tech by offering AT consultations, training, device demos, and funding strategies.

P: (207) 621-3195 

info@mainecite.org

MDTAP provides access to AT services through device demos, lending libraries, reuse initiatives, and financial resources.

P: (410) 554-9230 

TFN: (800) 832-4827 

mdtap.general@maryland.gov

MassMATCH helps individuals find and finance assistive tech through device exchanges, reuse programs, training, and trials.

P: (800) 244-2756

atrcpittsfield@ucpwma.org

atrcworcester@eastersealsma.org

atrcboston@eastersealsma.org

MATP offers AT device demos, loans, funding help, and public training to improve access for all Michiganders with disabilities.

P: (517) 487-1755

TFN: (800) 288-5923

TTY:(517) 374-4687

Fax: (517) 487-0827

STAR connects Minnesotans with disabilities to device reuse, demonstrations, funding info, and assistive technology support.

P: (651) 201-2640

(888) 234-1267

Provides short-term AT device loans, reuse services, and training to help Mississippians with disabilities become more independent.

P: (601) 853.5249

(800) 443.1000

projectstart@mdrs.ms.gov

Offers AT device loans, training, evaluations, and a powerful reuse/exchange program for people with disabilities in Missouri.

P: (816) 655-6700

info@mo-at.org

MonTECH helps Montanans access assistive tech via lending libraries, training, evaluations, and free consultations.

P: (406) 243-5511 Missoula
P: (406) 657-2089 Billings Office

ATP assists Nebraskans with disabilities in accessing AT through reuse programs, financial guidance, and equipment lending.

P: (402) 471-0734

TFN: (877) 713-4002

atp@nebraska.gov

Offers AT loans, evaluations, funding support, and reuse opportunities to Nevadans with disabilities or age-related conditions.

P: (775) 455-4454

TFN: (833) 427-1672

natrc@unr.edu

ATinNH provides training, device loans, reuse access, and services for individuals and educators across the state.

P: (603) 862-4320

Offers device demonstrations, funding assistance, loans, and training to help New Jersey residents access AT for medical and daily needs.

P: (609) 292- 9742

ATAC@disabilityrightsnj.org

NMTAP offers AT demonstrations, device loans, reuse services, and guidance on acquiring funding for New Mexicans with disabilities.

P: (505) 841-4464
Fax: (505) 841-4467
TFN: (877) 696-1470
nmtap@gcd.nm.gov

TRAID provides device demonstrations, AT loans, reuse, training, and technical support across 12 regional centers in New York.

P: (800) 624-4143

Offers AT evaluations, lending libraries, training, and reuse services to promote independent living for North Carolinians with disabilities.

P: (919) 855-3500
Fax: (919) 715-1776

ND Assistive delivers services including AT financing, device demos, home modification consultations, and medical device reuse.

P: (800) 895-4728

AT Ohio provides demonstrations, short-term loans, AT reuse, and connections to funding sources for individuals of all ages.

P: (800) 784-3425

(614) 292-2390

atohio@osu.edu

A leading AT program that provides device demos, reuse, financing, and training to help Oklahomans with disabilities thrive.

P: (405) 744-9748

(800) 257-1705

abletech@okstate.edu

ATI offers device loans, AT assessments, training, and financial guidance to help Oregonians with disabilities live independently.

P: (503) 361-1201
TFN: 1-800-677-7512
Fax: (503) 370-4530

info@accesstechnologiesinc.org

Provides AT resources including reuse, device demos, training, and community outreach.

P: (800) 204-7428

techowl@temple.edu

Offers device loans, education, and evaluation services across Rhode Island.

P: (401) 871-1145

jennifer.fiske@ors.ri.gov

SCATP offers hands-on AT demonstrations, reuse services, financial support, and training for residents with disabilities.

P: (803) 935-5263

DakotaLink helps South Dakotans access assistive tech through demonstrations, loans, reuse services, and home modification resources.

P: (800) 645-0673

TTAP improves access to assistive technology devices and services for Tennesseans with disabilities through partnerships across the state.

P: 1-833-772-TDHS (8347)
TN.TTAP@tn.gov

Provides device loans, funding help, training, and public education throughout Texas.

P: (512) 232-0740
TFN: (800) 828-7839

Fax: (512) 232-0761

UATP helps individuals with disabilities and aging adults acquire and use AT devices via loans, reuse, repairs, and evaluations.

P: (800) 524-5152

Offers free device loans, training, and consultations to promote access and independence across the state.

TFN: (800) 750-6355
Fax: (802) 241-0341

VATS provides AT services such as device reuse, lending, funding education, and training for Virginians with disabilities.

P: (804) 662-7000
VATS Phone: (804) 662-9990
Toll Free Number: (800) 552-5019
Toll Free TTY: (800) 464-9950

WATAP connects Washingtonians to assistive device loans, demos, funding info, and training to increase independent living.

P: (800) 214-8731
Fax: (206) 543-4779
watap@uw.edu

WVATS offers assistive tech support through lending libraries, training, reuse programs, and technical assistance statewide.

P: (800) 841-8436
Fax: (888) 510-3125

Email: wvats@hsc.wvu.edu

WisTech promotes AT access through loans, reuse, training, and technical help for Wisconsin residents with disabilities.

P: (608) 514-2513

DHSWisTech@dhs.wisconsin.gov

Offers device loans, training, and public education to help people with disabilities gain independence.

P: (307) 766-6187

(888) 989-9463

watr@uwyo.edu

Nonprofit organization dedicated to increasing access to assistive technology (AT) for people with disabilities.

Their services help individuals of all ages enhance their independence at home, work, school, and in the community.

IATP provides:

• AT device loans and demonstrations

• Financial assistance and funding resources for AT

• Training and advocacy support

• Device reutilization and recycling programs

P: (217) 522-7985
P: (800) 852-5110
Fax: (217) 522-8067