top of page
Artboard 1.webp

Welcome to The Hope 

Project for Kids.

Because no family should have to walk through rare disease alone.

8_edited.png

# Bravery Badge Kits Delivered

5_edited.png

# Families Connected to Critical Resources

3_edited.png

Advocacy in action: # of key policy issues addressed through outreach to lawmakers and rare disease coalitions.

Stay in the Loop

Thanks for submitting!

Our Programs

We offer a range of programs to support and bring comfort, encouragement, and joy to children with rare diseases and their families. Through these initiatives, we aim to empower and uplift each child, providing them with hope and positive experiences during their journey.

462297065_10235030343764596_2312696236122327165_n.jpg

The Hope Stories Project:

Read stories from families affected by rare disease.

2_edited.png

Resource Library:

Resources and guides for navigating each unique rare disease journey. 

6_edited.png

Parent and family meetups:

Virtual and in-person meetups to connect with other parents and families.

7_edited.png

Financial Assistance:

Direct financial support to familles to help ease the burden of medical costs and related expenses.

Untitled design (3).png

Bravery Badge Kits:

Bravery Badge Kits celebrate the courage of kids facing rare disease, honoring every milestone big and small.​

Tiny Advocates:

Resources and activities to educate and empower children to share their stories and

raise awareness​

1_edited.png

Our Goal, Vision & Commitment

We are here to help you. We fight together.

Volunteer, Advocate, or Donate

"We are all here to help one another... when we are together we can make things happen"

bottom of page