Home | The Hope Project For Kids: Dedicated to Helping Families with Children that have a rare disease.

Welcome to The Hope

Project for Kids.

Because no family should have to walk through rare disease alone.

Stay in the Loop

The Hope Stories Project:

Read stories from families affected by rare disease.

Resource Library:

Resources and guides for navigating each unique rare disease journey.

Parent and family meetups:

Virtual and in-person meetups to connect with other parents and families.

Financial Assistance:

Direct financial support to familles to help ease the burden of medical costs and related expenses.

Bravery Badge Kits:

Bravery Badge Kits celebrate the courage of kids facing rare disease, honoring every milestone big and small.

Advocacy:

Resources and activities to educate and empower families to share their stories and

raise awareness

Our Goal, Vision & Commitment

We are here to help you. We fight together.

Volunteer, Advocate, or Donate

"We are all here to help one another... when we are together we can make things happen"